Wednesday, December 10, 2014

To the Woman Who Stopped Me in the Whole Foods Parking Lot

You didn't stop a momma who was endangering her child.  Allowing her brother to carry her twenty feet to her car door with me a step ahead wasn't going to result in anything harmful (probably).   And if he had dropped her it would have been an accident, not child abuse. 

Maybe you should have not said anything.  Or said something nice.  Because this momma has enough on her plate to shed tears over people like you.  You see, she's not a baby.  She's nearly two and a half.  And she should be running toward the car or running away from me or her brother like every other two year old.  I should be stressed out about her disappearing from me in a parking lot or a store like every other two year old.  But I don't get to worry about those things.  Because she can't walk.  And I don't know if she ever will.  When Ben and I found out we were having a little girl, I imagined so many things for her.  Playing chase with her brother or the dog.  Dance recitals with constant glances to side stage to watch her instructor doing the dance.  Play time in the bath or trips to the swimming pool or beach.  And while I do still hold on to those dreams, sometimes it seems like they are slowly slipping away. 

 
I spend every day making sure she has the best opportunities for health and well-being.  She is almost always right by my side day and night..  I have maxed out every available therapy and searched high and low, near and far, for any and every doctor who may be able to help her.  And I get looks from strangers clearly wondering what I have done to her that would cause her to be in a full torso plaster cast.  Did I drop her?  Or beat her?  Am I a terrible parent?  So feel free to add yourself to that list. 
 
You're certainly not going to beat me up anymore than I already have.  Because I often times wonder if this is because of something I did or didn't do.  Or maybe if I would have been more observant early on.  Or maybe I'm still not searching hard enough for answers or solutions. 
 
But I do know that we are going to try to make things as "normal" as possible.  And if her loving brother wants to carry his two year old sister a couple of feet in a parking lot, I'm going to let him.  And I'm going to worry about her safety with every step he makes.  The same way I worry about them both with every breath that they take.
 
Because you didn't just stop any momma in the Whole Foods parking lot today.  You stopped a momma who loves her children fiercely.  And if something did happen to one of them, it would be an accident.  So please don't throw around the words "child abuse".  And maybe next time if you want to say something, make it nice.

Wednesday, September 17, 2014

Repurposing with a Home Remodel

Updating a house.  It can be so expensive.  Having done a teeny bit of work on this home, I see how quickly budgets can be blown.  We almost always got 3 or 4 quotes for every job.  And almost all of them came in at least 20% higher than we estimated for; some were as much as double.  And I wasn't just ballparking.  I was figuring materials and labor and demo and all of that other jazz (blame years of estimating for construction projects).  And there are most certainly some projects that Ben and I couldn't do ourselves.  (I'm looking at you, new hardwood floors).  We didn't even take on the task of painting the interior.....because it was every single interior wall.  Imagine doing that with two kids running around.  NO.  THANK.  YOU.

But we were able to get a couple (and I mean a couple) of things done ourselves.  One that I am most proud of is getting the foyer chandelier repainted.  It was big and laquered brass (and I'm sure quite appropriate 30 years ago).  So how exactly do you go about repainting a chandelier....

Find a fixture you want to paint (or repurpose).  This was in our foyer.  I like the shape and size, but the color (and moreso, the shinyness) just were not working. 

 If you are cool with wiring or electrical stuff, you can take it down yourself.  I am not.  This was also in our two-story foyer so we needed a tall ladder and more than one person to take it down.  Ultimately, we had an electrician come in and take it down while he was in the house to do some other stuff.  You might think this is expensive, but think about how much less it is than purchasing a new light fixture.  We hung the light from the garage door frame in our garage.

Remove the lightbulbs and tape over the electrical part.  I also taped over the candlestick part.  I had looked at a lot of online guides and some people don't do this.  I personally didn't love the look of the fixture being all the same color.  I like the contrast provided by the "candlesticks" being white-ish.
 I didn't take any pictures during the painting process.  It was late in the day and both kids were with me.  They had already been such champs hanging tight while I taped off the fixture.  This is the paint I used in Oil Rubbed Bronze.  It has pretty good reviews and I did not find it difficult to apply.  My one piece of advice would be to stay at least six inches away from whatever you are painting and keep the can moving.  You can always apply more, but drip marks are not pretty.  We ended up using two cans of paint on this fixture. 
 We had the electrician come back in and hang it up.  I had missed a lot of spots on the underside while painting.  The bottom of the light was about 4 inches from the floor of the garage.  In retrospect, I would have hung the light somewhere where we had more light and I could have seen the bottom better.
 So we had to do touch up painting while the light was hanging in the house.  We covered up everything below the light and also built a little plastic tent around the light.  We worked inside of our little plastic bubble to touch up all of the areas that didn't have enough coverage.  This was a complete pain.  Keeping spray paint in a confined area is not that easy.  That's why if we ever do this again, I will make sure I am working in great light and can see from every angle. 
 The light is now finished and it looks so great in the foyer.  The colors are a bit more in line with what is on trend now.  So for about $60 (the cost of the paint and electrician's time) I was able to totally transform the look of a room.  Money well spent when I take into account all of the fixtures I was looking at were over $1,000.

You hear a lot of people do a project like this and then decide they have a million things they want to spray paint.  I'm not there, but I definitely won't let a "little" project like this scare me.  It was cheaper and greener than buying new and I'm totally pleased with the finished product. 

Monday, July 28, 2014

Home Transformation

We closed on our new home in mid-May.  We moved to Illinois in early-June.  After what felt like forever, but was really not long at all, we moved into our new home in early July.  The flooring project took longer than expected so we had to push our move in date out a couple of weeks.  We were finally able to put down area rugs this past weekend. 

We didn't really take on "major" home improvement projects.  We installed unfinished 2-1/4" red oak flooring throughout the main level of the home.  There were several different types of flooring:  prefinished hardwood floors, original parquet floors, tile, carpet and original hardwoods.  Ben didn't love how it didn't flow.  We also painted the entire first and second floors.  Again, it was a flow issue.  We plan to do more over time, but it comes down to keeping the improvements in line with the value of the home.  I would love to redo the entire kitchen, but it works for now and it has been updated.  The kitchen I would want would cost a lot of money so it can wait close to a decade.  We would also love to do a media room in the basement when the kids are older.  And the yard needs a lot of TLC.  Our next big projects will probably be cleaning up the yard and replacing a lot of the old mechanical equipment - all but the hot water heater is original and will probably go out soon.

But for now, here are some of the updates.  I haven't hung a single thing on the walls yet.  We are actually still unpacking some boxes.  But these are the first three rooms you see when you come in the front door so they are the most done.  (And the pictures are from my phone so the quality is a little iffy).  Also, the rooms are not terribly dark, but they do look darker.  We practically live in a forest and there is a lot more canopy cover now than there was in April.  And we have the screens on the windows which makes it a little bit darker too. 

The foyer had a lot of brass and yellow walls.  The floors were parquet.  And there was a two tone floralish runner on the stairs.
 We painted the walls SW Neutral Ground (it's actually BM paint that has been matched; our painter preferred BM).  We spray painted the chandelier with Rustoleum oil rubbed bronze.  The stairs were refinished and the risers were painted white.  We also replaced the floors.  The stain color is Provencial with a satin finish. 
 The dining room was similar to the entry.  Same floors and same green. 
We painted the walls SW Versatile Gray (again BM color matched), replaced the light fixture, replaced the floors. (And put the screens back on the windows.)
 The living room had prefinished hardwood floors that were newer (and it stung a little bit to take them out just because they were nice).  And the walls were the same yellow as the entry (or close to it).
 The hardwood floors were replaced (stain is Provencial with satin finish) and the walls were painted SW Versatile Gray.  We put the screen back on the windows.


It's nice to finally be settling into a routine here.  I still have a ton of stuff to put away upstairs.  More updates to come. 

Monday, July 7, 2014

It's Difficult to Believe She Is Almost Two

We had our meeting with Early Intervention this morning.  I know Allyn is behind in a lot of areas.  The biggest concerns for our family are her gross motor skills and speech.  We had all of our in-home assessments with EI and we met as a group to set forth some plans for treatment.  We have kind of decided that she will do two sessions of physical therapy, two (or one) session of speech therapy and one session of occupational therapy weekly.   And twice a month we will meet with a developmental therapist. 

The results didn't really take me by surprise.  Nor did the plan we outlined for her therapy.  The care coordinator and therapists all said we could scale back if it seemed to be overwhelming.  I would seriously move mountains for this little girl.  So we are going to do as much therapy as we can for the next six months or year.  And we all too often hear about how His timing is perfect.  We will have a lot of therapy beginning in the next weeks or months.  And in terms of managing two kids, it could be a lot.  Fortunately it is going to work out that Nolan will be in kindergarten when she is doing most of her therapies so I am hopeful that this will impact him as little as possible. 

I don't ever want him to feel like I am constantly pouring into his little sister and he is just some blip in our lives.  And that gets away from me sometimes because he can be so self-sufficient.  It's really hard to believe how demanding, needy little he used to be.  And I know I gave him 100% of myself before his sister arrived and I still manage to carve out time for him when Ben is home or Allyn is napping so I just need to get over the self-imposed mom guilt. 


 But the take away from our meetings were that while Allyn seems to be cognitively on track, her lack of gross motor skills keep her from doing age appropriate activities and tasks so she is behind on some of her more developmental milestones.  And the lack of weight bearing has kept her from strengthening a lot of her muscles necessary for fine motor skills.  And she doesn't really have any core strength and that plays into some of her mouth muscles (file this into things I would have never known) and that is impacting her speech and eating. 

At some point we will also have a follow up with nutrition.  She is just so little.  And we offer her foods.  Lot of options throughout the day.  But we just don't seem to be chipping away at her small size with any measurable amount.  So we will explore that avenue too.

 
But everyone noted how pleasant she is and how she seems engaged with adults.  (Kids freak her out a little because they can be a little a lot more unpredictable.)  I hope that at some point I can update all of this and say just how far she has come in a short period of time.  But if it takes a long time, that's okay too.  And if we never get there, we'll still love on this sweet little girl the same as yesterday. 

Thursday, July 3, 2014

Growth


This has been one of those weeks where life lessons have just been tossed in my face left and right.  And honestly, I've been so busy I just don't even want to take the time to stop and reflect on them.  Things have been insanely rough lately.  And yet we still have so much to be thankful for.  And it's easy to lose sight of that.
 
I have felt like the ugliest pig lately.  No showers, gym clothes, breakouts and bad hair galore-ugly.  It's a shame I put so much of my self worth on how I look and it translates into how I feel.  I have a husband who always finds me beautiful and when my babies see their momma it's nothing but love.  And I just think if I had less gray hair or the bags under my eyes were gone or my hair had more volume or my skin would stay clear for longer than a minute, things would be better.  And then I feel so silly for thinking any of that matters.  I mean: health, loving family, all of our needs (and most of our wants) are met.  It's really selfish.
 


This was taken on a day when I showered, dried my hair, put on mascara and used light to drown out a lot of the imperfections.
 And my insecurities spill into my relationships.  I probably don't give my husband enough attention because I just feel so gross.  And I shy away from adoring looks from my kids because of pimple on my chin.  I really don't have a lot of friends and it's hard for me to make new friends.  I shy away because I worry people will judge me or the way I look or what I drive or where I live.  And honestly, they probably are.  But does that mean they wouldn't like me?  Probably not.  And so my kids aren't around a lot of other kids.
 
This little fella is like a sponge.  He soaks up everything.  And unfortunately, I haven't been the very best role model for him lately.  Lucky for me, he still loves me "more than anything in the whole world."
 This week we had a meeting with neurology to make sure there was nothing else going on with Allyn that was causing the scoliosis and delays.  The physician said that sure she was delayed physically, but cognitively there is nothing wrong with her.  She clearly understands everything we are saying and just has a hard time communicating verbally.  But to keep down the road we are on with getting her in as much therapy as we can. 
And this little dolly.  She almost always brings a big smile to my face.  (Hey she's in that phase where she gets frustrated a lot, and so do I.  So there are some not so smiley moments.)
But she said something else so very profound.  Stop.  Stop stressing; stop doing too much for her.  Get her out around other kids her age.  Let her play and explore.  For the last year I have really been keeping her close.  We spend a lot (almost all) of our time together.  I want to protect her.  And in a lot of ways I want to shield her from all of the emotions and judgement that I feel most of the time.  She needs to learn to do things on her own.  There will be frustration and there will be tears.  But through it all she will grow.  And maybe, so will I. 

So I'm going to do my very best to just live with these people I love so much.  If the last year has shown me anything, it's that life will throw you curve balls and you will adjust.  You really don't have a choice.  But I have failed immensely on the loving life front.  I've just wanted to make it to the next day, the next month, the next phase, the next cast....  And hopefully, that will translate into fun and friends and really loving this next chapter in our story.

Wednesday, June 25, 2014

Finding a New Normal

Ahhhh, moving.  If you want to see someone near her maximum stress level, have her relocate with kids.  We are slowly figuring things out.  Some key things to keep in mind:  everything is more expensive and it takes longer to get anywhere you want to go.  So entertaining the kids is forcing me to pick and choose activities so we can keep the budget healthy. 
 
We have also been going through the process of getting Allyn enrolled in Early Intervention.  In our last city, we just did private therapy.  When we started it was just physical therapy.  But as she has gotten older, we have realized she is going to need more and more services.  Services that would probably cost thousands of dollars every month.  So we decided to use our state's early intervention services for the next year and then when she is three see if we can qualify for services through the school district.
 
We recently had our OT assessment  That is the one area that I thought we may actually not qualify for.  She was 40% behind.  I guess sometimes I just forget how old she is and what is typical for a child her age to be doing.  I still think of her as a baby.  But she is almost two.  The therapist gave us some things to work on to help her grip and strength.  And once the assessments are done, we will add that to the list of therapies we will be in weekly.  And while it seems like a lot, I am just so thrilled there are resources out there to make this as easy as possible for the whole family.  And therapists who clearly love their jobs.
 
She has started crawling.  And just last night she pulled up to stand with a little help.  She has only done that one other time before.  The elation on her face when she did it will forever be etched in my memory.  It is by far one of the happiest memories I have of her to date.  And after she gave me a big hug she had the best giggle.  And those moments make me forget about all of the hurdles. 

 And then there is Nolan.  He is also enjoying himself.  We try to get out of this place to play and explore.  He really wants to go swimming.  And eat goldfish crackers...ALL. DAY. LONG.  I know he will settle into a good routine once we are able to get into the house.
 So.  The House.  We will be pushing our move in date.  The flooring install took longer than expected.  And even with the delays we factored into the move in date, it just wasn't enough time for the poly to cure.  And we didn't want movers destroying new flooring so we pushed it a couple of weeks.  Also, the fumes.  It is definitely going to need a couple of weeks so it doesn't make me or the kids sick. 

Here is a little sneak peek.  This is the dining room before.  Now I understand maybe you love hunter green.  And that is a paint treatment. Not wallpaper.  But I do not.  I like simple neutrals.  And sparkly accessories.  So we are modifying some things.  I will say the owners took the best care of their home.  They just really loved yellow.  A lot. 


Tuesday, June 17, 2014

Cast Number 7


 Hi Everyone.  We have been crazy busy.  Not just normal busy...but packing up the house and moving a couple of states away busy.  Relocation with kiddos is an entirely different beast from what I am used to.  But things are good.  We were able to find a beautiful home in a great neighborhood and amazing city.  But for now we are in corporate housing so things area little stressful.  Y'all, we don't even have a vacuum cleaner.  It's rough.  (First world problems rough).

But this little girl is handling it pretty well.  And her brother is pretty pumped about staying in a "hotel."  Both kids have been sleeping past 7 a.m.  And so has momma.

 We do a lot of sitting around.  And watching television (and sharing snacks).  And playing with the handful of toys that we brought with us.  We have also joined a children's museum but with remodeling on the home and checking on contractors, we have only been able to go once.
 But now for the "meat and potatoes" portion of the post.  Allyn got Cast #6 off this past week.  Her back looked about the same.  But it's clear that she is doing some growing. 
 She is always such a beyond pleasant child with her cast off.  She loves being able to sit and bend and kneel without the extra weight and restriction. 
 We also took a little mini-vacation to Lake Geneva, Wisconsin.  We had planned to go to the beach but casting schedules were modified and our vacation week changed and then no one could go.  I'm still a little bummed about it (again, first world problems), but it was nice to be able to schedule a couple of days away less than a couple of hours from the house.  Nolan was again excited about the hotel and the indoor waterpark.  Allyn took a while to warm up to the waterpark.  I had to hold her the entire time the first day.  By the second day I was able to sit with her in the water after being there for a few HOURS.  She didn't much care for all of the splashing in her face.  And for a child that is kept away from most water, can you blame her?




Yeah, so we are back in the Chicagoland area.  It makes treatment for this awful battle with scoliosis a little easier.  We were able to wake up and drive less than an hour to the hospital.  From our temporary house.  And it will be the same from our house.  I hope this makes her acclimation to each cast a little easier. 

 Her spine is still around 40 degrees.  BUT the rotation is getting better.  When looking the vertebrae, you can see a white dot on each side.  On her left side (the right side of the picture), we can see two more white dots on this film than we could on the last.  Hopefully this is giving her a better shot at symmetry and improving her lung volumes.  And maybe once we get her a little more untwisted, we can work on getting the curvy out. 
 And recovery this time around was even better.  I think having her bubba around to terrorize certainly helped her feel much better. 

Friday, March 7, 2014

Embrace the Awkward

There is not enough Internet to fully explain how awkward I was as a child (and still am today). 
 Rest assured, it started early.  Sure I was adorable.  But clearly, my mother had NO IDEA of what to do with that hair. 
 I was in fifth grade.  My ears were not pierced, so I wore some homemade clip on earrings.  And a bow.  And curled my bangs.  I think this is when I began to slip into serious awkward territory.
 And in sixth grade I had my mom take me to get a spiral perm.  What?  I think I wanted to look like Julia Roberts.  Instead, I look more like a Labradoodle.
 Another one in sixth grade.  I'm on the middle row on the left.  I was pretty much always a smaller child.  And a really late bloomer.  I think that most certainly added to the awkward. 
 So in seventh grade the perm was growing out but I brought back the bow.  And an oversize tunic shirt with shoulder pads.  I was also wearing floral leggings and Sam and Libby bow flats.  Maybe I would have looked less weird if any of my clothes fit. 
 Eighth grade was a less awkward year for me.  You may wonder what in the world is going on in my mouth.  I was born without a whole mess of adult teeth.  Two top lateral incisors (which wasn't awkward at all, let me tell you), two bicuspids and all of my wisdom teeth.  A lot of dental work had to happen on this grill to get it to where it is today.  So from seventh through tenth grade I had all of thes springs and braces and headgear and mouth drama. 
 Ninth grade may have very well been the PEAK of my awkwardness.  I had braces and acne and puberty was still eluding me.  So I jazzed up my school pic with one of my MOM'S necklaces.  Fancy. 
 Also, about this time I broke my leg.  Let's amp up that awkwardness in the front yard at my dad's house.  Why not?
 
I was probably sixteen here.  Maybe seventeen.  I look twelve.  And judging from the way most girls dress today, I look eight. 
 
Let's just be thrilled that with the help of dermatology, cosmetic dentistry and over twenty years of taming this mop on my head I look marginally less awkward today. 

Monday, February 24, 2014

Cast #5

Last Sunday we flew to Chicago to get Allyn's next cast.  Cast Number Five.  Seriously y'all.  We are on number five.  Before this whole casting thing started I just knew we would be doing three or four casts and she would be straight.  Turns out that is not our journey.  We had a few days of intense physical therapy to work on crawling and standing and trunk ROTATION, ROTATION, ROTATION.  The lack of the ability to rotate her trunk along with the added weight of the cast has made hitting gross motor milestones pretty much impossible.  But without the added weight she was doing a great job of standing and even some assisted walking.  It is after all about 15% more weight added to her body. 
 So Sunday we headed up to the western suburbs to look at houses.  Wait.  What?  I probably forgot to mention to you all that we are moving back to the Chicago area.  Ben has a new position and it makes getting her medical care so much easier.  We looked at twenty houses in December and found nothing.  We looked at six more and nothing.  But it makes it hard when you have a pretty good idea where you want to be.  If worse comes to worse, we can always rent something.  I just plan on us being in this house for longer than we have been anywhere so I don't want to end up with a floor plan I don't love or a location I'm not wild about.  After we looked at homes we had to go and watch some cartoons at the hotel. 
 We had our last bath for the next SEVERAL weeks.
 And got all dried off.  She really enjoys bath time now.  But the first bath out of cast is always a little foreign to her. 
 We headed into Shriner's early on Monday morning.  They were forecasted for snow, fortunately nothing was coming down before six that morning.  Yeah, it's six in the morning.  She is all smiles. And she was until we went back to the pre-op holding area.
 We got checked in and had x-rays.  The quality is not the best (I blame Ben's photography skills), but we are still somewhere in the 50-degree range.  We have kind of decided that we are not seeing much any improvement because she really isn't growing.  So if you want to say a little prayer (or a big one) that she grows in this cast and starts to straighten out that would be amazing. 
 While she was in surgery I got a call from Nolan's school that he threw up in class and that I needed to pick him up.  So that marks the FOURTH time he has had the stomach bug this year.  I called Mimi to let her know and she headed in to pick him up.  (He had the stomach virus for FOUR days.  It was AWFUL). After the casting we headed back to our hotel and the snow was coming down.  They ended up getting about seven inches of snow.  Also that night the stomach bug got Ben.  Ugh!
 The next morning we went and got some of the margins trimmed to make the cast more comfortable and headed home.  Bye Chicago.  See you in a couple of months.