Wednesday, June 25, 2014

Finding a New Normal

Ahhhh, moving.  If you want to see someone near her maximum stress level, have her relocate with kids.  We are slowly figuring things out.  Some key things to keep in mind:  everything is more expensive and it takes longer to get anywhere you want to go.  So entertaining the kids is forcing me to pick and choose activities so we can keep the budget healthy. 
We have also been going through the process of getting Allyn enrolled in Early Intervention.  In our last city, we just did private therapy.  When we started it was just physical therapy.  But as she has gotten older, we have realized she is going to need more and more services.  Services that would probably cost thousands of dollars every month.  So we decided to use our state's early intervention services for the next year and then when she is three see if we can qualify for services through the school district.
We recently had our OT assessment  That is the one area that I thought we may actually not qualify for.  She was 40% behind.  I guess sometimes I just forget how old she is and what is typical for a child her age to be doing.  I still think of her as a baby.  But she is almost two.  The therapist gave us some things to work on to help her grip and strength.  And once the assessments are done, we will add that to the list of therapies we will be in weekly.  And while it seems like a lot, I am just so thrilled there are resources out there to make this as easy as possible for the whole family.  And therapists who clearly love their jobs.
She has started crawling.  And just last night she pulled up to stand with a little help.  She has only done that one other time before.  The elation on her face when she did it will forever be etched in my memory.  It is by far one of the happiest memories I have of her to date.  And after she gave me a big hug she had the best giggle.  And those moments make me forget about all of the hurdles. 

 And then there is Nolan.  He is also enjoying himself.  We try to get out of this place to play and explore.  He really wants to go swimming.  And eat goldfish crackers...ALL. DAY. LONG.  I know he will settle into a good routine once we are able to get into the house.
 So.  The House.  We will be pushing our move in date.  The flooring install took longer than expected.  And even with the delays we factored into the move in date, it just wasn't enough time for the poly to cure.  And we didn't want movers destroying new flooring so we pushed it a couple of weeks.  Also, the fumes.  It is definitely going to need a couple of weeks so it doesn't make me or the kids sick. 

Here is a little sneak peek.  This is the dining room before.  Now I understand maybe you love hunter green.  And that is a paint treatment. Not wallpaper.  But I do not.  I like simple neutrals.  And sparkly accessories.  So we are modifying some things.  I will say the owners took the best care of their home.  They just really loved yellow.  A lot. 

Tuesday, June 17, 2014

Cast Number 7

 Hi Everyone.  We have been crazy busy.  Not just normal busy...but packing up the house and moving a couple of states away busy.  Relocation with kiddos is an entirely different beast from what I am used to.  But things are good.  We were able to find a beautiful home in a great neighborhood and amazing city.  But for now we are in corporate housing so things area little stressful.  Y'all, we don't even have a vacuum cleaner.  It's rough.  (First world problems rough).

But this little girl is handling it pretty well.  And her brother is pretty pumped about staying in a "hotel."  Both kids have been sleeping past 7 a.m.  And so has momma.

 We do a lot of sitting around.  And watching television (and sharing snacks).  And playing with the handful of toys that we brought with us.  We have also joined a children's museum but with remodeling on the home and checking on contractors, we have only been able to go once.
 But now for the "meat and potatoes" portion of the post.  Allyn got Cast #6 off this past week.  Her back looked about the same.  But it's clear that she is doing some growing. 
 She is always such a beyond pleasant child with her cast off.  She loves being able to sit and bend and kneel without the extra weight and restriction. 
 We also took a little mini-vacation to Lake Geneva, Wisconsin.  We had planned to go to the beach but casting schedules were modified and our vacation week changed and then no one could go.  I'm still a little bummed about it (again, first world problems), but it was nice to be able to schedule a couple of days away less than a couple of hours from the house.  Nolan was again excited about the hotel and the indoor waterpark.  Allyn took a while to warm up to the waterpark.  I had to hold her the entire time the first day.  By the second day I was able to sit with her in the water after being there for a few HOURS.  She didn't much care for all of the splashing in her face.  And for a child that is kept away from most water, can you blame her?

Yeah, so we are back in the Chicagoland area.  It makes treatment for this awful battle with scoliosis a little easier.  We were able to wake up and drive less than an hour to the hospital.  From our temporary house.  And it will be the same from our house.  I hope this makes her acclimation to each cast a little easier. 

 Her spine is still around 40 degrees.  BUT the rotation is getting better.  When looking the vertebrae, you can see a white dot on each side.  On her left side (the right side of the picture), we can see two more white dots on this film than we could on the last.  Hopefully this is giving her a better shot at symmetry and improving her lung volumes.  And maybe once we get her a little more untwisted, we can work on getting the curvy out. 
 And recovery this time around was even better.  I think having her bubba around to terrorize certainly helped her feel much better.