We took a trip back to Arkansas to see Ben's family in early June. Allyn just loves being at Mimi's house. They may have taken her to Chuck E. Cheese. She also had roseola while we were there. She screamed pretty much the entire drive down and ran a very low grade fever. Fever broke, and BOOM rash. Childhood illnesses always pop up at such interesting times.
We joined a pool. It was awesome. We went up there several times a week beginning in July when we joined. And we made the most of it until they closed on Labor Day. Allyn would play in the baby pool and sit in the shade and eat snacks. Nolan learned how to really swim. And I got to do a fair amount of relaxing and talking with friends when Ben was there and Nolan had a friend to play with. The pool may have been the highlight of summer.
And then it was time to get back into the swing of things.
Now that it's fall and we are finding a routine, things are easier. We will meet with her orthopedic surgeon this month to figure out what to do about her spine: back to casting or continued bracing. And we will also figure out what to do about her heart in the next few weeks. We are hoping a heart catheterization will be the route that allows us the fix the ASD but the hole is almost her entire atrial wall and may be too big. She may also have to much of a pressure gradient and pulmonary hypertension that would make that not possible. I know she will be in good hands and it will get figured out, I just pray that whatever route we take is not a struggle for her.