Oodles of doctors appointments coming up. We get to meet with a pulmonologist and have a follow-up with her orthopedic surgeon next week. The following week is her heart cath and punch biopsy to try and diagnose her genetic condition.
And I'm so many things: nervous, excited, and indifferent.
Nervous: What if something goes wrong? What if we can't fix it? These are my worries. I know we have sought out very competent doctors, but things happen. And the reality is that they can happen to anyone. And if they can't fix it with the heart cath, that means open heart surgery and long recovery times and the possibility for more complications.
Excited: This could be the path we need to go down to get things fixed and get her to her healthiest. What if we make a genetic diagnosis so we can prepare for those things down the road like spinal surgery with more certainty?
Indifferent: This has been our journey for a long time now. It's been so taxing there are times that I really just have no feelings about it anymore. I just go into a zone and don't think about it. It's selfish, but true.
Image Courtesy of Bethany Blair Photography
So if you read this and you think about it in the next two weeks, say a really big bold prayer for this sweet little girl of ours.