Friday, December 18, 2015

Opening Up

On Wednesday, December 16 Allyn underwent open heart surgery at Lurie.  Going into it, I was not afraid or unsure (maybe a bit anxious).  We left the house at 5:15 am for a 6:30 call time.  She went back at 7:30 am.  At 12:30 she was waiting in the room for us.  Her heart was fixed.

We learned she had a 20 mm ASD with very thin margins; the occluder would have most likely failed even if we tried.  And it would have been close to her aorta; no good.  Her PDA was about 2 mm and double ligatured.  The valves had mild regurgitation.  It is all of her cardiology team's opinion that they will improve when the volume of blood flow through her heart decreases and the size of her heart also decreases.


Day 1 was okay.  She slept a lot.

Night 1 and Day 2 were rough.  She was in a lot of pain.  And I was exhausted.  Things seemed to be best when she was sleeping.  But for me, it was rough because she wanted me touching her.

Today her fluids have been high, her oxygen is low, she is running fever off and on and she is totally over all of the tubes and cords and machines. She still hasn't eaten.  It's pitiful.  I just want her to feel better.

1 comment:

Ann Thompson said...

Praying forr your sweet Allyn!