We took the cast off at home on Sunday, March 29. The next day we headed into the city so she could have an echocardiogram. With suspected mitochondrial disease we have to check a lot of things.
The next morning we headed out for a family vacation to see Ben's family and some friends just outside of Denver. (I would love to write a post on the trip....so we'll see).
I wish I could say more. Or say something positive. But right now I am just in this weird sad headspace. I know I have so so so much. And I should be thankful. But a big part of my heart breaks every single day when I think about how hard this has been (on me). I think Allyn has handled it beautifully and Nolan has been a trooper. And I think even Ben is much more gracious given the situation. But I know things will look up again. I just hope it's soon.